A lot of medical stuff happened today. My doctor must have sent an e-mail that got everyone jumping or something because I sure was popular.
Overall I have been kind of blue the past couple of days. Weird stalker aside, which I’ll update you on later, my mood has just been overall a little sad. I think that’s a thing, mood changes.
My nurses suggested that I get an app called Aby that is for people with MS. There seems to be quite a bit of information on things like diet, exercise, recipes, various podcasts and there is even access to chat with a nurse 24/7. It’s pretty neat – I need to spend some more time checking it out for sure but, one of the things I noticed was that as soon as you open it, it asks you to track two things: your mood and your your level of fatigue. I already knew that lack of sleep could impact me negatively but who knew this could make me moody. Great. Like I wasn’t an emotional wreck before MS 🙄.
Back to my day. Around noon when I was sitting down to a mouth watering double bacon cheeseburger – just kidding, I wish. Make that my usual salad with random protein (today was turkey in case you’re dying to know) and random berry (raspberry) to keep things fun, my cell phone rang. It was Manulife, telling me that my MS drugs were approved and that my case manager (first I’d heard of her!) would call me within 24 hours.
A mouthful of salad later and I was back on the phone with someone named Alexis, who I found out is my new support nurse for my MS drug therapy. They work in the background with my benefits people to make sure that things are covered and answer any prescription related questions for me. They also have a partner team who monitors my blood work for any abnormalities caused by my medication and flags it immediately for my doctor.
We’re now at least 30 minutes into my lunch and I am finally getting some time to ‘enjoy’ my salad. I have a meeting in less than 25 minutes so my focus is to on getting nutrients into my body.
Next caller is Aiko, my specialty drug case manager from Manulife. After answering lots of the same questions as the rest of my superhero team had, the only new information that I got was that they only cover my medication if I get it from a company called Bayshore. There goes my high hopes of racking up my optimum points from Shoppers Drug Mart with my incredibly expensive prescription. I talk until I am five minutes late for my meeting.
So there you have it folks, my MS team. Hopefully I don’t have to talk to them all at once again on the future, but it sure seems like I am a VIP with a bunch of assistants — that’s how I am going to choose to look at it anyway.
I’ll leave it at that for today. Friday is upon us and I can’t wait for the weekend! OH quick stalker update.. still blocked everywhere, still marked private on Instagram. I haven’t specifically heard from them but received a sus request the following afternoon from someone with no followers and who was following very little people. I denied it and nothing new to report.